Finding reliable information about Periodic Paralysis takes time, effort and the ability to discern between fact and fiction. When Susan and I began this journey in 2009 there wasn’t a lot of information available to read about Periodic Paralysis. In fact, we were told by many misinformed medical doctors that Susan’s condition was in the domain of neurological/psychiatric disorders. Susan and I had been married for more than 30 years at that time. I knew the doctors were wrong. My gut feeling was that all of the medications (14+ at the time) the doctors were prescribing were at the core of the muscle paralysis.
One of my first research projects led me to the inside covers of a medical-research text written by Kerry Brandis ‘Acid-base pHysiology’. It was the text medical students were suppose to be reading in medical school. It is the cornerstone of where I began to understand the relationship between chemical substances, metabolism and acid-base pH environments.
It has been quite a journey and one which Susan and I have continued to this day to help her recover enough to experience some quality of life. Susan took the ‘bull by the horns” (so to speak) and hasn’t let go since. I never could have imagined in my wildest dreams how accomplished she has become (considering how ill she has been) and the number of people she has helped over these past 10 years. I know how deeply she cares about each and every one of you and knows how much you care about her.
So, let’s get to it.
I plan to start with the basics of what I know, how I came to know it and how it all comes together in an awareness and understanding of muscle paralysis. The information comes from a variety of reliable sources. The people who still believe and argue (without merit) that Periodic Paralysis is neurological/psychiatric in origins, I ask that you remove the blinders and pay close attention. I will describe what I know based upon research, science and observations. Being a former teacher, I have an appreciation for the subjective value of anecdotal records when they are accompanied by objective test results.
Current State of Affairs
When I browse the web for information about Periodic Paralysis the top results reveal commercial interests in promoting a pharmaceutical chemical approach to treating Periodic Paralysis symptoms. At this time there is no science based evidence that chemical substances (including herbal,over-the-counter and home-remedies) do anything to alleviate Periodic Paralysis symptoms, do anything to promote a cure and in fact (according to their own postings about dangerous side-effects) might actually cause harm even resulting in death. Conducting experiments with fewer than 100 research subjects making subjective journal entries over a few week period of time falls pathetically short of scientific experimentation. And for for FDA to allow such scams to be promoted to the general public is nothing short of criminal and hints at corruption at the highest levels of medicine and government. It provides lawyers with the material needed to file lawsuits. Anyone attempting to treat Periodic Paralysis with chemicals of any kind is misinformed or deceptive. At this time the only safe way to alleviate the symptoms of the condition is to eliminate known triggers. It’s not an easy path, not a cure but it inexpensive, safe, natural and produces results. Don’t misunderstand what I am saying. I am not saying that Periodic Paralysis is caused by chemical substances or other known triggers. I am saying that chemical substances, exercise and many other things can make symptoms worse. Science leads us to understand the fundamental nature of mineral metabolic disorders, ion channelopathies, acidosis, alkalosis and many other genetic and environmental conditions. We must follow the science to be safe while waiting for a legitimate treatment and possible cure to be found.
Sometimes is it is easy to be intimidated by all the academic jargon. Professionals often forget how to speak in normal language. At first it might be a be difficult to see the thread pulling all the pieces of the Periodic Paralysis together but not impossible. Keep reading and study while storing everything away for future reference. Every organ in the body plays a specific role in keeping us alive and well. Some parts we can live without while others are necessary to keep us alive.
Understanding the relationship between chemical substances and personal health does not happen overnight. It is a process which usually has to be initiated by ill health and near death experiences. Waiting for someone else to help us is not always an option. Sometimes we must clear our own pathway.
I wish everyone well and hope my writing is helpful in some meaningful way. Susan and I both speak from experience and have a sincere desire to help.
What is Paralysis?
Here is a list of common events or conditions which can lead to the loss of muscle function (paralysis) aside from the mineral metabolic kind (periodic paralysis) we focus on here at Periodic Paralysis Network, Inc..
- Birth Defects
- Spinal Cord Injury
- Multiple sclerosis
- Cerebral Palsy
- Post-Polio Syndrome
- Traumatic Brain Injury
“Paralysis is a loss of muscle function in part of your body. It can be localized or generalized, partial or complete, and temporary or permanent. Paralysis can affect any part of your body at any time in your life. If you experience it, you probably won’t feel pain in the affected areas.
A treatment plan and outlook for the condition will depend on the underlying cause of paralysis, as well as symptoms experienced. Technological innovations and therapeutic interventions may help you maintain your independence and quality of life.”
Reviewed By: Elizabeth H. Holt, MD, PhD, Assistant Professor of Medicine, Section of Endocrinology and Metabolism, Yale University. Review provided by VeriMed Healthcare Network. Also reviewed by David Zieve, MD, MHA, Medical Director, A.D.A.M., Inc.
“Mineral metabolism disorders are abnormal levels of minerals — either too much or too little — in the blood. Minerals are very important for the human body. They have various roles in metabolism and body functions. They are essential for the proper function of cells, tissues, and organs.
Some minerals, such as iron, make up part of many proteins and enzymes in the body. Others, such as potassium, help to produce proteins from amino acids and are involved in carbohydrate metabolism. Minerals also play a role in the building of muscle and bone and are important for normal body growth.
Metabolism refers to all the physical and chemical processes in the body that create and use energy, such as:
- Circulating blood
- Digesting food and nutrients
- Eliminating waste through urine and feces
- Regulating temperature
Disorders of mineral metabolism are sometimes passed from parents to their children through genes. Other medical conditions, such as starvation, diarrhea, or alcoholism, can cause mineral metabolism problems.
Minerals that play a large role in the body include:
Disorders in which mineral metabolism problems often occur include:
- Disorders of phosphorus metabolism:
- Disorders of potassium metabolism:
- Disorders of iron metabolism:
- Disorders of copper metabolism:
- Disorders of calcium metabolism:
- Disorders of sodium metabolism:
- Dilutional hyponatremia (SIADH)
- Disorders of magnesium metabolism:
- Disorders of selenium metabolism
- Selenium deficiency
- Selenium excess
“Your body’s pH balance, also referred to as its acid-base balance, is the level of acids and bases in your blood at which your body functions best.
The human body is built to naturally maintain a healthy balance of acidity and alkalinity. The lungs and kidneys play a key role in this process. A normal blood pH level is 7.40 on a scale of 0 to 14, where 0 is the most acidic and 14 is the most basic. This value can vary slightly in either direction.” Read More at Healthline…
What is acid-base balance?
“Your blood needs the right balance of acidic and basic (alkaline) compounds to function properly. This is called the acid-base balance. Your kidneys and lungs work to maintain the acid-base balance. Even slight variations from the normal range can have significant effects on your vital organs.
Acid and alkaline levels are measured on a pH scale. An increase in acidity causes pH levels to fall. An increase in alkaline causes pH levels to rise.
When the levels of acid in your blood are too high, it’s called acidosis. When your blood is too alkaline, it is called alkalosis.”