The author relates a poignant account of her precious daughter, Sandy, who was born with Sotos Syndrome, a rare genetic disorder. This book is well written, accurately detailed, and full of emotion and contains a photo album, as well as detailed information about Sotos Syndrome.
Set in the 60’s and 70’s, as a young mother, the author struggles to obtain the appropriate necessities and rights for her daughter. Through these endeavors, she realizes the need for reform in all aspects of life related to disabled individuals and their families. She sets out to make those changes. The messages in this book are still relevant and important in today’s world. This is a “must read” book from which everyone can reflect, ponder, appreciate, learn and gain inspiration.
“She is right! What an injustice and I am part of it! I know exactly how she feels. I understand. I am the only person in this room who has true empathy for this mother.” (Page 6)